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There isn't yet a cure for cystic fibrosis

Posted: March 13, 2013 - 12:10am


I enjoyed Barry Paschal’s column in the Wednesday News-Times, but it had some incorrect information. Cystic fibrosis is not cured by a lung transplant.

The symptoms may be relieved and the person with CF can live a more normal life, but CF is caused by a recessive gene (both parents must have the gene). A lung transplant does not change the gene. CF disease manifests itself in both digestive and pulmonary systems.

My oldest daughter, Lisa, was diagnosed with CF at the age of 18 months. At that time, life expectancy was 5 years of age.

Today, she is 43 years old. She is a mother, works full time and is active in church and PTO activities. This January, she also caught a virus and was close to being placed on a lung transplant list. With many treatments and IV therapy, she did recover from the acute illness, but still has CF, as she always will.

Please continue your work in promoting CF fund-raising, but realize that there is not yet a cure – any cure, even lung transplants.

Jackie Voss


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The best way to deal with a

The best way to deal with a disease that doesn't have a cure yet, is to stay healthy and active as much as possible. If patients experience unknown symptoms, they should go to the closest emergency clinic, for a quick check-up. Health is very important, so everything should be considered, just to be sure they are fine.


Oh, is that so? But I have

Oh, is that so? But I have heard that Lung transplant is the only remedy to overcome cystic fibrosis. And if this is wrong, why is that the doctors are suggesting for lung transplants? I am confused now.

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